My journey with Endometriosis…
Growing up I had some stomach issues the doctor called “irritable bowel syndrome” and I had painful periods but I never thought that those were symptoms of Endometriosis. It wasn’t until after I got married that my pain got to a point where I couldn’t handle it. At one point the pain was so bad I couldn’t get out of bed to get my pain meds. That is when I went to the doctor. Come to find out I had quite a few symptoms that I never really thought about. We had been trying to get pregnant for about three years with no luck and I had pain when I ovulated or was on my period. Going to the bathroom was extremely painful. It was so painful it felt like my bladder and bowels were coming out. I would hold my lower abdomen to try to ease the pain. I also have nausea mostly from day 19 until I start AF. My mom also suspected that she has Endometriosis, but she did not have surgery to confirm. The doctor decided that a Laparoscopy was needed to see what was going on. That is when I was officially was diagnosed with Endometriosis. During my first surgery they used a laser to remove the Endometriosis. My recovery was quick and easy. I did not get pregnant right after, but my pain was gone. Two years later I miraculously got pregnant. I tell you this for one HUGE reason. After I gave birth I felt better than I had in a very long time. I lost 66 pounds while nursing. I didn’t have the fatigue I normally have. I was able to loose weight and felt motivated and energized. BUT the month I stopped nursing the symptoms started coming back. When I talked to my doctor he said it was because my ovaries shut down while nursing. Four years after my first surgery my pain was back with a vengeance. Once again it was painful to use the bathroom and when the pain got to the point I couldn’t get out of bed again, I had surgery number two. This time they cut it out, my recovery was hard and long. I was down for two full weeks and the third week I was defiantly taking it easy. Come to find out I had a really big growth on the opening of my bladder and that has caused some new challenges, they cut a 5mm growth of Endometriosis out of the opening of my bladder… THAT is probably why I keep peeing my pants! It has been very frustrating for me. I’m sure that is TMI. I have found that when I eat grain free and cut the pop (caffeine) that my pain almost goes away. But this is real life and I am not perfect and I have a really hard time cutting the grain and if you know me at all I LOVE food and Dr Pepper! So my journey continues and I’ll keep trying new things and learning.
I know everyone is different and the symptoms of Endo vary from person to person. I hope my story will help someone out if there struggling with Endo to feel validated and know they are not alone. As I have been researching the symptoms of Endo I have been surprised to know how many of the symptoms I have and did not know were related. I really had no idea why I have felt so crappy for so many years. Here are some of the symptoms of Endometriosis.
Severe pain in the abdominal area
Pain during or after intercourse
Heavy or irregular bleeding
Irritable Bowel Syndrome (IBS)
Pain during bowel movement or urination
There is also what is called SILENT ENDOMETRIOSIS when you have it but have no symptoms. It is going undiagnosed and most have what is referred to as “unexplained Infertility”